ORIGINAL PAPER
The quality of life of patients with cerebral palsy versus the general population
1
Department of Social Nursing, Faculty of Health Sciences, Ludwik Rydygier Collegium Medicum in Bydgoszcz, Nicolaus Copernicus University in Torun, Poland
2
Department of Paediatric Nursing, Faculty of Health Sciences, Ludwik Rydygier Collegium Medicum in Bydgoszcz, Nicolaus Copernicus University in Torun, Poland
Submission date: 2019-06-03
Final revision date: 2019-07-23
Acceptance date: 2019-09-01
Publication date: 2019-11-19
Pediatr Pol 2019;94(5):288-292
KEYWORDS
TOPICS
ABSTRACT
Introduction:
Cerebral palsy (CP) is the most common cause of motor disability among children. This disease, as a compound syndrome, affects the biological, psychological, and social functioning of a patient and has different degrees. Feedback from studies on the quality of life (QoL) of children with CP make it possible to improve the relationship between a child suffering from CP and the surrounding external environment. Obtained information about the patient’s frame of mind and the limitations caused by CP allow us to perceive the problems that children suffer and take actions aimed at solving them. Improving the QoL of children with CP becomes one of the main goals of therapeutic interaction – in parallel with the alleviation of disease symptoms.
Aim of the study:
To assess the QoL of patients with CP as compared to the general population.
Material and methods:
The study was conducted among 128 patients with CP. The reference group consisted of 130 healthy subjects. The study was of prospective nature, conducted using a diagnostic survey based on the Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core.
Results:
Healthy children are characterised by better overall QoL. They also achieved significantly higher scores in individual subscales (physical, emotional, social, school, and psycho-social functioning) excluding emotional functioning.
Conclusions:
There is a need to implement comprehensive therapy for children with CP that enables self-care, or assistance in everyday self-care and school activities. It also seems important to adapt the home and school environment in accordance with the needs of patients suffering from CP.
Cerebral palsy (CP) is the most common cause of motor disability among children. This disease, as a compound syndrome, affects the biological, psychological, and social functioning of a patient and has different degrees. Feedback from studies on the quality of life (QoL) of children with CP make it possible to improve the relationship between a child suffering from CP and the surrounding external environment. Obtained information about the patient’s frame of mind and the limitations caused by CP allow us to perceive the problems that children suffer and take actions aimed at solving them. Improving the QoL of children with CP becomes one of the main goals of therapeutic interaction – in parallel with the alleviation of disease symptoms.
Aim of the study:
To assess the QoL of patients with CP as compared to the general population.
Material and methods:
The study was conducted among 128 patients with CP. The reference group consisted of 130 healthy subjects. The study was of prospective nature, conducted using a diagnostic survey based on the Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core.
Results:
Healthy children are characterised by better overall QoL. They also achieved significantly higher scores in individual subscales (physical, emotional, social, school, and psycho-social functioning) excluding emotional functioning.
Conclusions:
There is a need to implement comprehensive therapy for children with CP that enables self-care, or assistance in everyday self-care and school activities. It also seems important to adapt the home and school environment in accordance with the needs of patients suffering from CP.
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