ORIGINAL PAPER
Assessment of proxy quality of life in children with cerebral palsy: a cross-sectional study
 
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1
Department of Physiotherapy, S.R.M. College of Physiotherapy, S.R.M. Institute of Science and Technology, S.R.M. Nagar, Kattankulathur – 603203, Kanchipuram, Chennai, Tamilnadu, India
 
2
Department of Pediatrics, S.R.M. Medical College Hospital, and Research Centre, SRM Institute of Science and Technology, S.R.M. Nagar, Kattankulathur – 603203, Kanchipuram, Chennai, Tamilnadu, India
 
 
Submission date: 2020-07-11
 
 
Final revision date: 2020-09-21
 
 
Acceptance date: 2020-09-21
 
 
Publication date: 2021-01-30
 
 
Pediatr Pol 2020;95(4):212-215
 
KEYWORDS
TOPICS
ABSTRACT
Introduction:
Cerebral palsy (CP) is a non-progressive brain disorder in the developing fetal or infant brain that reduces the quality of life of children with cerebral palsy. Every child with CP may have individual experiences and problems that restrict participation in daily life activities. Quality of life (QOL) in children with CP needs to be measured by CP-specific questionnaire, Cerebral palsy – Quality of life (CP-QOL). CP-QOL questionnaire is being used for this purpose. Hence, we aimed to study the proxy QOL of children with CP from the primary caregivers.

Material and methods:
One hundred and twenty-one primary caregivers (parent) of children with CP in the age group of 4 to 12 years were recruited by convenience sampling technique for the cross-sectional descriptive study. The parents of the children attending the Physiotherapy Outpatient Department, Occupational Therapy Outpatient Department, and Pediatric Outpatient Department were asked to complete the CP-QOL questionnaire. Collected data were analyzed and reported in frequency.

Results:
CP-QOL questionnaire was completed by 121 primary caregivers of CP children. The overall QOL score obtained was 37.67 ±4.57. The seven domains of the questionnaire were taken into consideration, and QOL was found to be compromised. The domains of pain, access to services and impact of disability family health were severely compromised and less reliable when compared to other domains. The CP-QOL score among the children with CP in the age groups 4 to 6 years, 7 to 9 years, and 10 to 12 years were 37.44 ±12.52; 39.95 ±4.74 and 39.64 ±1.65, respectively.

Conclusions:
The proxy QOL of children with CP was compromised, and the CP-QOL can be used to assess the QOL in children among the developing countries.
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